Why did I mostly stop writing? Because I was dealing with something I no longer knew how to talk about. Mostly because people really don’t like reading about disability. All the able-bodied ableists who want to pretend that somehow disability must be the fault of the person suffering from it. Yeah. Lots of my readers too. The comments became unbearable and remain that way. I mostly keep them turned off.

I’ve written a few new pieces on my own idiosyncratic experience of TD. I thought I’d share with you Robert Whitaker’s long and well-researched piece. I exchanged emails with him the other day and he also agreed with me that infection might be part of what is going on. I’m getting a bit of traction on my experience of that gleaned from years of tending my body. There is a lot of research going on about how the microbiome and it’s health is at the root of all health. There is no separation between the mind and body as I’ve always said.

My experience of TD is that the blood/brain barrier is decimated by the drugs and that allows for opportunistic infections into the brain. As I have treated myself for Lyme disease and several co-infections I tested positive for, the TD has also been impacted in ways that can only be interpreted as being, also, an infectious process. This is my experience, yes. I cannot prove anything but I will say it with the hope that research in this direction will continue. Certainly there is much research into the microbiome that is showing connection to all manner of disease and illness. It is only medicine and it’s practice that lags dangeorusly behind.

Whitaker’s article is a devastating blow to those who suffer from tardive dyskinesia. Support research and care for everyone. Right now those with TD are throwaways.

Read the article below at Mad in America.


These are my pieces on my experience with TD

Tardive Dyskinesia is brain injury

Life with Tardive Dyskinesia

Tardive dyskinesia – a sign of iatrogenic injury from neuroleptics
Intro to Ayurveda (for chronic illness, psych drug withdrawal, TD)

Tardive dyskinesia and thoughts from the mindful healing process….

be the snake: eat yourself


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